Description
Executive Director
Bleeding Disorders Alliance Illinois (BDAI)
bdai.org
Location: Fully remote*, must reside in Illinois
Full-time exempt: 40 hours per week
Salary: $90,000+, commensurate with experience
Benefits: Paid vacation days, paid sick days, stipend for health insurance, possible stipend/reimbursement for remote work expenses, including technology expenses
About the Organization
BOAi is a nonprofit organization whose mission is to improve the quality of life for the inheritable bleeding disorders community by supporting individuals and their families with unbiased information and resources which allows them to live healthy and active lives. Since 1949, BOAi has provided trusted resources, education, advocacy, and community support to help individuals lead healthy and active lives.
Position Overview
The Executive Director is responsible for the management and supervision of all operations in accordance with the intent of the board of directors and consistent with the organization's bylaws and state regulations.
We are seeking an experienced Executive Director who can lead with clarity and operational excellence a lean, focused nonprofit, values innovative ideas and problem solving, and is passionate about serving this community. The ideal candidate can thrive in a small, mission-driven organization, knows how to lead a team, and possesses strong major donor experience with a proven success record.
Core Responsibilities
Job responsibilities include, but are not limited to:
Providing daily management of the organization with small staff of two or more part-time and/or full-time employees, ensuring operational continuity and financial oversight.
Maintaining strong relationships with key stakeholders, including pharmaceutical partners, clinicians, patients, and peer organizations.
Being responsible for the planning, coordination, and direction of the organization's operations and programs.
Prioritizing fundraising to grow programing and services for the community.
Overseeing and reporting on the organization's activities for the board of directors.
Ensuring that services and funding relationships are robust enough to meet or exceed strategic goals and objectives.
Coordinating and leading the annual budget evaluation and development, monthly budget reviews, and periodic forecast updates.
Additional duties as assigned.
Requirements
Qualifications
Education and Experience
Bachelor's degree preferred with 5-7+ years of leadership experience in a nonprofit setting
Proven successful experience in fundraising, budgeting, and organizational management
Experience working with boards, volunteers, and community stakeholders
Skills and Competencies
Strong leadership, strategic thinking, and decision-making abilities
Excellent communication and relationship-building skills
Creative problem-solving skills
Financial acumen and operational management expertise
Project management and organizational skills
Ability to work independently while managing multiple priorities
Preferred Qualifications
Proven success record of cultivating major donor portfolio
Bilingual (Spanish) is a plus
Working knowledge of content management systems and social media
Work Environment and Expectations
Fully remote*; must reside in Illinois
Full-time (40 hours per week), including 3-4 nights or one weekend a month
Travel required for in-state events, community outreach, and occasional national conferences
Regular interaction with stakeholders, partners, and community members
Occasional lifting of materials and supplies for events
How to Apply
Please submit your resume and cover letter detailing your relevant experience and interest in working at Bleeding Disorders Alliance Illinois to board@bdai.org.
